tag:blogger.com,1999:blog-85696413504908983482024-03-05T02:44:19.485-05:00My Diabetic ChildA mom's journey raising a child with Juvenile Diabetes.Lorahttp://www.blogger.com/profile/07192247387107228743noreply@blogger.comBlogger367125tag:blogger.com,1999:blog-8569641350490898348.post-80433899672864920052014-08-12T20:21:00.003-04:002014-08-12T20:21:28.571-04:00T-Slim - I'm beginning to love you...<div dir="ltr" style="text-align: left;" trbidi="on">
Seems crazy, but Justin has been pumping with the t:slim for two months already. I am actually starting to love it. I admit, there are a few features I do miss about the Ping, but I would say the same about the slim if Justin switched back at this point. <br />
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Just for giggles, I took some time to re-read my <a href="http://www.mydiabetic-child.com/2014/06/pumping-with-tslim.html" target="_blank">two day</a> and <a href="http://www.mydiabetic-child.com/2014/06/tslim-two-weeks-in.html" target="_blank">two week</a> review of the t:slim. Lots has changed in two months.<br />
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One thing that I am really in awe about is the customer service at Tandem. It is AWESOME!! My local rep, the reps at FFL and even when I called on the phone recently... all awesome! This is defiantly a welcomed change after the last several month trying to deal with Animas' 45min hold times and month long delays in supply orders.<br />
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Back to the Tandem CS... You may remember from my first post that Justin's t:clip broke within a few hours of us starting the slim. Well... I called and they actually replaced it. I couldn't believe it.. for real! I thought for sure, they would just apologize, but they apparently stand behind their product and that alone makes me feel good about standing behind them. In addition to that, we have not had any more issues with the t:clips. Maybe that was just a freak thing.<br />
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I also mentioned in my first post that I needed to find the quick bolus button... found it!!<br />
Apparently there is this thing... they call it a reference guide and it has a table of contents or something?!?!?! But don't let that throw you off... it has pictures and easy steps to follow. Perfect for a girl who is anti-directions!!<br />
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Side note: I could have just asked Justin, but we won't talk about that. I'll just be proud of my accomplishment in figuring it out and ignore the fact that he was not impressed because it was old news to him.<br />
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Moving on... One of my biggest complaints about the slim has been the cartridge change. I am pleased to say that I have found a groove and its not taking me AS long... its still not something I'll be able to slam out 5 min before the bus comes, like I did with the Ping, but I've lost the urge to jab something with the fill needle during the change process. Progress, my friends, progress.<br />
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Oh, and I gave up on the Apidra. It wasn't worth chancing... all I needed was for it to crystallize in the middle of the night and Justin end up sick. Plus, switching before school starts gave me an opportunity to get use to the Humalog again.<br />
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Justin's favorite part... With each site change comes a case change.The mix-n-match case is one of Justin's favorite things about the slim. I totally get why. He says he needs a few more colors, so I'm thinking stocking suffers... IF I can hold him off that long.<br />
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As far as concerns go, this was a big one... the reverse correction. It doesn't subtract from the suggested bolus unless your BG is 69 or under. I consider this a safety issue for the younger users. Justin is 13, and understands what needs to be done. He is capable of handling it in a non-hectic summer setting, but I'm curious to see how this goes when school starts next week.<br />
On a positive note... when Tandem submitted the Slim/G4 combo to the FDA recently, they also added this to the updated pump. They are listening to their customers and that makes me happy. Unfortunately, we know how speedy the FDA is... sooo, there's that. You can read about it on <a href="http://www.diabetesmine.com/2014/08/tandem-diabetes-pumpcgm-combo-news-plus-an-inside-look.html" target="_blank">Diabetes Mine</a>.<br />
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Charging is one of those things that I will resolve to get better about... that's all I've got. Justin is currently riding on about 65% battery(better than my phone, which is at 27%). Luckily, the battery in the slim lasts a really long time between charges and when I do remember to plug it in, it doesn't take long to get to 100%. Its the remembering that gets me, but as long as I can remember at least once a week... we are okay. Added bonus: I plugged Justin in the other day while he was on the computer and another day while we were in the car. So there are plenty of convenient charging options.<br />
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This pump is definitely growing on me and Justin loves it. I miss my remote the most, however, especially at might when I'm standing on a shelving unit, digging under the covers, in hunt of the all mighty pancreas... loft beds are not d-mom friendly.<br />
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Lorahttp://www.blogger.com/profile/07192247387107228743noreply@blogger.com6tag:blogger.com,1999:blog-8569641350490898348.post-40753844415233378892014-07-24T00:28:00.000-04:002014-07-24T00:28:51.140-04:00FFL 2014...<div dir="ltr" style="text-align: left;" trbidi="on">
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I have had three weeks to organize my thoughts about Friends for Life 2014, but I'm not sure if the next six months could help properly portray all the wonderfulness of those five days. Last year I wrote all about the <a href="http://www.mydiabetic-child.com/2013/07/cwdffl13.html" target="_blank">"truth" of FFL in pictures</a>, and to be honest, this year was much of the same... I have many pics of friends laughing and hanging out like we've known each other all our lives; it definitely feels that way. We are family, after all, and distance doesn't separate us one bit.</div>
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I'll start out with the "were on our way" pic I texted to a few of my fellow D-Moms. Maybe a warning, of sorts, that trouble is on its way :) </div>
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Just like last year, I found this chic... or she found me. Potato - Potato.</div>
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<tr><td class="tr-caption" style="text-align: center;"><a href="http://www.ourdiabeticlife.com/2014/07/ffl-joyfulness.html" target="_blank">Sorry Meri... I posted it again(and I'm linking) without permission </a>#becauseyoutoldmeno </td></tr>
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Then there was "Moms Group"...</div>
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Pineapple drinks at the pool...</div>
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Some race car driving...</div>
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Teen Dances... CWD takes very good care of our kiddos.</div>
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Fireworks...</div>
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and a whole lot of fun with friends.</div>
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<span style="text-align: left;">I admit, I go to FFL for myself just as much as I go for Justin. It's a time for both of us to be surrounded by the feeling of "same". Almost five years ago(next month) I started this blog. At the time I felt lost, alone and in a dark hole that continued to spiral deeper and deeper. Then I met a handful of ladies...</span></div>
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<a href="http://www.ourdiabeticlife.com/" target="_blank">Meri</a>, <a href="http://www.theprincessandthepump.com/" style="text-align: center;" target="_blank">Hallie</a><span style="text-align: center;"> and </span><a href="http://sweet2thesoul.blogspot.com/" style="text-align: center;" target="_blank">Heather</a> were among them. We all "clicked" and have remained friends, even after the Sunday night chats dwindled away. I owe them, along with a few others, my sanity. Without them... I would be a crazy(ier) mess. </div>
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Not that the kids mind since they are too busy to care where I am anyways...</div>
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Leighanna was excited <a href="http://www.theprincessandthepump.com/" target="_blank">Sweets</a> come to FFL this year and really loved hanging out with her.<br />
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And Justin seems to find his voice while were there... that's a good feeling. </div>
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On Sunday morning, it was really hard to say goodbye to those I love more than words... </div>
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We hung out...</div>
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and laughed...</div>
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Until they literally dragged us away...</div>
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I missed them as soon as I hugged their necks goodbye.</div>
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Until we meet again my friends.</div>
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Lorahttp://www.blogger.com/profile/07192247387107228743noreply@blogger.com7tag:blogger.com,1999:blog-8569641350490898348.post-29329166001557835962014-06-21T04:51:00.000-04:002014-06-21T19:45:27.715-04:00T:Slim - Two weeks in...<div dir="ltr" style="text-align: left;" trbidi="on">
Justin has been on the t:slim for two weeks now. You can read all about my initial thoughts <a href="http://www.mydiabetic-child.com/2014/06/pumping-with-tslim.html" target="_blank">here</a>.<br />
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Justin is still loving it, of course. I feel is has its pro's and con's.<br />
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When it comes to being user friendly, I'm not sure it could get much better. The touch screen for adding carb amounts and bg #'s beats the thumb aerobics it took to get all that info into the Ping... AND if you mess something up, you don't have to start all over. BONUS!<br />
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Changing carb ratios and basal rates... super easy. You don't have to button push through the entire list just to change one rate... choose the one you want, and tada!!<br />
I do have one complaint about the way this is set up though... On the ping the basal rates, i:c ratios, ISF and bg target all had separate screens for you to set them up. All of this info is in one place on the slim. So say Justin's basal is .625 from 7am to noon, but I need a different i:c ratio for breakfast and lunch... I have to set up a whole new block within the profile... so both blocks will be exact basal except for the i:c ratio. This is by no means the end of the world, but I can foresee it getting confusing when Justin is trying to read off all the settings to the Endo(as he does at every appt). The CDE even questioned why I had like 3 blocks with the same basal rate... and it was because either the carb ratio or the ISF was different. <br />
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Again, not the end of the world, but I prefer them separate. Maybe I just like the info in different screens because all the numbers, all at once, can become overwhelming.<br />
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I consider this a safety fail for the younger users... It doesn't subtract insulin to correct low-ish bg's. For whatever reason, the slim does not start subtracting insulin until they are 69(or below). So if he's 70... I have to manually subtract insulin from the suggested delivery so that he doesn't end up low(ish) again. This may be a HUGE challenge when school starts. Justin would have to know his different sensitivity factors and targets(they vary during PE etc...) in order to do this on his own. On top of that... he actually has to remember to do it in the first place. Not sure why Tandem would give the pump the capability to subtract, but not let it base it off the target rate rather then what the standard low bg may be. Maybe we were just spoiled since the Ping did this for us.<br />
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Site changes... holy mother of crap they are a pain in the ass!!!! I'm not even going to abbreviate it... that's how bad it is. As easy as the touch screen feature is... they sure didn't mimic that ease of use into the cartridge fill. Granted, I have waisted a little less insulin with each cartridge change, but the process is lengthy and frustrating. To be honest, if Justin didn't love it so much... this may have been a deal breaker for me.<br />
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Apidra(sigh) - when they said it didn't work in this pump, they weren't kidding. I was in hopes that we would be one of the lucky ones that didn't have any trouble, but no such luck. For us, the Apidra stops working around the 18th hour in the slim. This means extra site/cartridge changes... kill me! Only six vials of Apidra to go... I'm trying not to throw away money, but I probably won't last that long. <br />
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Charging the t:slim... one day, I will actually remember to plug it in while he's in the shower. One day! The battery does last a while... thank goodness. I think I've only charged it twice since he started wearing it two weeks ago and it hasn't died yet. Can't say the same about the meter though. It will be nice not to spend all that money on batteries anymore.<br />
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Speaking of the meter... I still love the Verio IQ(aside from the need to charge it thing). Strips take way less blood then the Ultra strips and I have not had an error yet. I managed to score a Verio sync too... so I'll have to try and compare the two when I get a chance.<br />
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I am in hopes that the site changes will get easier. Cross your fingers for me.<br />
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Lorahttp://www.blogger.com/profile/07192247387107228743noreply@blogger.com3tag:blogger.com,1999:blog-8569641350490898348.post-79740728015039649772014-06-08T02:58:00.000-04:002014-06-08T02:58:29.284-04:00Pumping with T:slim <div dir="ltr" style="text-align: left;" trbidi="on">
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It's official, we are now part of the t:slim family. </div>
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Its been less than 48 hours, but his excitement has made all my concerns take a back seat. </div>
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Mind you, I have not had to do a site change, YET. When we went to training, the CDE did the first cartridge fill to show me how its done. We may have to revisit my stress level after I do one on my own... thank goodness for youtube, I guess.</div>
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So far the pump has been great. Aside from trying to bolus him a few times from the Ping remote(twice... for realz), I think we're adjusting to the new(by "we're" I mean Justin, btw). I need to pack away that remote so I'm not temped, but first, I need to find a meter that will use those strips(aside from the mini). I DO absolutely LOVE the Verio IQ. I plan to switch to it, but the supply hoarder in me has about 6 months worth of the ultra test strips to use. Plus, I need to make sure my insurance will cover the Verio strips... all those "non-preferred" supplies and all.</div>
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I really hope they do because the light at the end of that baby is AWESOME(said in my singing voice).</div>
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I had no idea what I've been missing all this time... I was light deprived.</div>
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So just to be all official, here are my initial thoughts on the t:slim...</div>
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I love the ease of it - even an old mom like me can figure out how to use it(although I do still need to find the quick bolus button).</div>
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I love that I can see the IOB (and the duration) right on the home screen - this feature saves a lot of button pushes(and guessing).</div>
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Justin loves it - which makes any of the following worth dealing with.</div>
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It.is.so.slow - last minute, right before you run out the door, site changes are a thing of the past. The slim goes at its own pace and there's no rushin it. It also boluses slow.</div>
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**In all fairness, I was warned about this though**</div>
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There are A LOT of confirmation screens - also warned and probably more of an annoyance to Justin then it is to me.</div>
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I do have one REALLY valid complaint though... The T:clip</div>
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He had only been wearing it for about three hours and a t:clip bit the dust.</div>
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All he did was get out of the car and bam... pump was hanging from the tube.</div>
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At almost $20 bucks a piece... these should really be a little more durable. Thankfully this one was given to us, so it didn't hurt... as bad, anyways.</div>
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Lorahttp://www.blogger.com/profile/07192247387107228743noreply@blogger.com1tag:blogger.com,1999:blog-8569641350490898348.post-23711415931295454482014-05-09T00:10:00.000-04:002014-05-09T00:11:58.458-04:00Change... No Es Bueno!<div dir="ltr" style="text-align: left;" trbidi="on">
I hate change. Just the thought of it makes me uneasy. It scares me.<br />
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From the outside you would never know. I adapt extremely well to just about everything thrown my way. But on the inside... I scream through the entire process. So a few weeks ago when Justin told me he wanted the <a href="http://www.tandemdiabetes.com/Products/t-slim-Insulin-Pump/" target="_blank">t:slim</a>, I instantly felt nauseous.<br />
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No way... the Ping has been good to us the last four years. And the remote - I love my remote.<br />
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If I'm being honest, I've spent the last few weeks trying to talk him into waiting. I've read things that made me feel this change is not a good idea. I've chatted and messaged people that have had a "less then positive" experience. But every time I tried to tell him the flaws, I could see the painful disappointment in his face and I realized that I just need to let change happen. Because Justin chooses to let it.<br />
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I have seen an immeasurable amount of growth in Justin over the last few months. Crazy growth. Growth I never thought I would be ready for since D entered our lives. He is taking control. He has done it at his own pace... In his own time. And that's okay because he's doing it and he's doing it right.<br />
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He knows how to handle his care. He knows that mistakes happen (like giving yourself insulin for the serving size(3 pks) of M&M's when your teacher only gave you one pack... oops!) and he knows how to fix it.<br />
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Even though I fear... I am so very proud of him. <br />
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The paper work has been filled out for the t:slim. The insurance has been verified, the Endo has signed off and authorization has been submitted. All we wait for now is the approval. Justin knows that he will be more responsible for bolusing since we will no longer have a remote... I explained this fact SEVERAL times. He's agreed and this change is happening. I will just need to adapt. Ultimately, this is Justin's load to bear and he should be able to manage it with whatever device he chooses. I will just be here, for back up, when he needs me.<br />
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Maybe sometimes, change es bueno.<br />
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Lorahttp://www.blogger.com/profile/07192247387107228743noreply@blogger.com2tag:blogger.com,1999:blog-8569641350490898348.post-82691671317733178302014-03-11T00:12:00.000-04:002014-03-11T00:12:43.727-04:00Growing up...<div dir="ltr" style="text-align: left;" trbidi="on">
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My face and my voice say "GOOD JOB BUDDY!!!!", but my mind is screaming "HOLY SHIT!"<br />
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More and more Justin has been taking on his own care... the problem is there is no warning. I just get an "oh, by the way, I was 56 in 3rd period so I had some skittles and then I still felt funny on the way to 4th so I had some M&M's."<br />
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His BG was 120 at lunch, which is about 15 minutes into 4th period... soooo he rocked it. What can I say to that?<br />
<br />
Over the past few weeks, he has self treated at midnight(we did have a chat about this). Self treated at school for lows a few times. Decided on 21 carbs for a mini cupcake(no phone call, no trip to the nurse)... he rocked those numbers too, BTW. He's even dabbled in texting me info. I'm waiting for the nurse to find out and lose it.<br />
<br />
... the shiz has been getting deep around here.<br />
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So much for my "helicopter-mom-itis" really working hard to screw him up.<br />
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I really couldn't be more proud of him, but I am extremely scared all at the same time. All these jumbled up feelings, swarming like they are ready to sting at any given moment... it's overwhelming.<br />
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I think the self treating at midnight scared me most. He was still awake, he says, and felt it. He tested and had a juice with a side of Hershey's. He was probably just waiting for an excuse to eat the chocolate and I can't deny that he did good.I can also appreciate him not wanting to wake me up, but at the same time I had to explain to him that, though I am really proud, at night he HAS to wake me, even if its after he treats himself. See, I can compromise ;)<br />
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Now if I can only get him to remember to tell me when he opens his last vial of test strips...<br />
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OR!!! When his pump alarms with less than 20u left.<br />
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<span style="font-size: large;">AND</span>... if someone can tell me how to handle this...<br />
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No worries...<br />
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A day in the life of self care and party invites... please hold while I willingly jump.<br />
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Lorahttp://www.blogger.com/profile/07192247387107228743noreply@blogger.com4tag:blogger.com,1999:blog-8569641350490898348.post-74371457121168683522014-02-24T21:38:00.000-05:002014-02-24T21:38:13.983-05:00When Taking Control Scares the Mama...<div dir="ltr" style="text-align: left;" trbidi="on">
It was my night off. I don't get them often... Maybe once every other week or so. The reason behind that is an entire blog post in itself, so I'll save it for later. Justin tested his BG before bed and he was 189, a tad high, but he had about .40u still on board from the strawberry dessert he had at his Nonie's house; so I let him go and told the hubby to set his alarm for 1:30. By all rights, this IOB should have landed him right above 150.<br />
<br />
In the night, sometime after 3am (it was actually 3:45am I found later) I feel the hubby jump out of bed. This can only mean he slept through his alarm. Thankfully, so we thought, Justin was sittin pretty with a BG of 145.<br />
<br />
The next morning Justin drops the bomb...<br />
"Before I fell asleep last night, I checked my blood and it was 49. I had some Skittles and a Hershey Nugget."<br />
<br />
Silence(insert birds tweeting and my heart breaking into 1000 pieces)...<br />
<br />
"Thank you for taking care of that, buddy, what time was it?"...<br />
<br />
"I don't know", he says.<br />
<br />
Looking back in the meter logbook it was a few minutes after midnight.<br />
<br />
I don't think about the "what ifs" that much anymore. 5 1/2 years into this T1 journey, we just roll with whatever is thrown our way, but ever since that... I'm scared all over again.<br />
<br />
Part of me is extremely mad that Anthony slept through that alarm. Angry that I can't even take one night off without worry. ONE! The thoughts of what if Justin didn't handle it on his own won't leave me... what if... what would he have found at 3:45?<br />
<br />
I am so thankful Justin has started taking control and I am proud that he knows how to handle his care. But all I could do, besides praise him for a job well done (he was sitting pretty at 145 after all) and thank him for letting me know what happened, was remind him that no matter what time it is... he can come get me so that I can check him again to make sure he's safe.<br />
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I could not imagine the alternative. Praying all of out sweet children sleep safe.<br />
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Lorahttp://www.blogger.com/profile/07192247387107228743noreply@blogger.com4tag:blogger.com,1999:blog-8569641350490898348.post-24585163219972332592014-02-20T23:40:00.001-05:002014-02-20T23:40:06.365-05:00Miss It Here...<div dir="ltr" style="text-align: left;" trbidi="on">
I have found myself really missing my blog for the past couple months. REALLY missing it, more so than before. Wishing I had more time to sit down and really get it all out. Not that things are bad; they are actualy pretty good, but I can feel myself needing an outlet. That place where I can leave the shit, the worry, the stuff that's piling up because I'm holding it all in. I need the outlet so that I can fully enjoy the actual triumph(s) in front of me and not expload from overload. Afterall, that was the purpose of me starting this blog in the first place.<br />
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I think I took for granted the quiet time I use to have during the day when the kids were in school. At the time, before I went back to work full time, Justin was in elementary school with a nurse that was just as in tune to his diabetes as I am. She was a godsend. During the day, I had time to sit, in the quiet, and write about everything. Some things I published and some things still sit in my drafts box, years later, for me to look back on. Maybe one day I will have the courage to hit the publish button on those posts too. Back then, I had the opportunity to cry the quiet tears without anyone knowing. I miss the quiet sometimes.<br />
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Balancing work and home has it's definate challenges... doesn't leave space for the quiet time or even not-so-quiet extra time to sit in front of a computer and blog. I won't complain about my job, however, I know how fortunate I am to be able to work from home. I know how fortunate I am to be off work just as the kids are walking in the door from school. Though, as any job will, it has it's "sressful days", I really do actually like what I do. I'm grateful for that.<br />
<br />
Diabetes has been, well...diabetes. Justin has started to step up on his own, he's trying new sites for his pump and really chiming in with how we handle cetain parts of his care. This makes me proud and stressed all at the same time. He called me the other day for lunch, that converstaion went a little like this...<br />
Me: "Hello"<br />
Justin: "Hi mom, my bg is 127, but just so you know I was 50 in 3rd period so I had some skittles, and then on my way to 4th, I still felt low, so I just had some M&M's."<br />
Me: (jaw on the floor) "okay, do what your pump says for lunch"<br />
<br />
Did he even need to call me at that point??<br />
<br />
On the flip side of that, he's really starting to get frustrated about being 'different". That's how he describes himself. "Different". That makes me sad. He shouldn't have to feel different. Though the cause of him feeling this way can't be balmed solely on D... all the gizomos and vibrating and blood and beeping... sure doesn't help. He asked me not not make him wear the CGM anymore... "the vibrate is loud and people stare". *sigh*<br />
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How do I help him feel less different? <br />
<br />
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Lorahttp://www.blogger.com/profile/07192247387107228743noreply@blogger.com2tag:blogger.com,1999:blog-8569641350490898348.post-50397179058701021002013-10-22T14:17:00.000-04:002013-10-22T14:17:49.408-04:00In Memory of Shamae...<div dir="ltr" style="text-align: left;" trbidi="on">
<div style="text-align: center;">
<span style="color: magenta;"><span style="background-color: black; font-family: georgia, 'bookman old style', 'palatino linotype', 'book antiqua', palatino, 'trebuchet ms', helvetica, garamond, sans-serif, arial, verdana, 'avante garde', 'century gothic', 'comic sans ms', times, 'times new roman', serif;">How lucky I am to have something that makes saying goodbye so hard.</span></span></div>
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<span style="background-color: black;"><span style="color: magenta;"><span style="font-family: georgia, 'bookman old style', 'palatino linotype', 'book antiqua', palatino, 'trebuchet ms', helvetica, garamond, sans-serif, arial, verdana, 'avante garde', 'century gothic', 'comic sans ms', times, 'times new roman', serif;">~Carol Sobieski and Thomas Meehan, </span><i style="font-family: georgia, 'bookman old style', 'palatino linotype', 'book antiqua', palatino, 'trebuchet ms', helvetica, garamond, sans-serif, arial, verdana, 'avante garde', 'century gothic', 'comic sans ms', times, 'times new roman', serif;">Annie</i></span></span></div>
<span style="background-color: black;"><br /></span>
<br />
You hear of those connections, you know, the connections between people, such as law enforcement or soldiers... the type of connection/bond that forms even with those you may have never even met. You rise when they need you, hurt when they hurt and when you lose them- you lose a part of yourself.<br />
<br />
It may sound odd, but I understand that connection. Don't misunderstand, I do not think I am even remotely on the same level of a soldier or law enforcement. I just know what its like to have that connection with someone... because of the DOC.<br />
<br />
Five years ago(as of yesterday) our lives changed forever. I spent about nine months lost. Then I found blogs...<br />
<br />
<a href="http://crazy-happy-life.blogspot.com/" target="_blank">Shamae's blog</a> was one of two blogs I originally found and quickly fell in love with(<a href="http://diabetes-sweeties.blogspot.com/" target="_blank">Jill's</a> was the other). All I could think was "I can't believe I'm not really alone". "There are others out there that feel this way". It was all so hard to believe, but it was also the start of healing for me and I will forever be grateful to her for that.<br />
<br />
Not long after, the Sunday Night Chats began. It took me a while to muster up the courage to join in(I'm a little self conscious and all), but when I did, you can not possibly understand how much I looked forward to those chats. We literally sat up for hours, sometimes ridiculously late, laughing our butts off like we had been best of friends all our lives. I smile just thinking about it, but it also makes me a little sad that we allowed it to end. Especially now that it can never possibly be the same.<br />
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Makes you realize how important it is to keep in touch with those you love.<br />
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Lorahttp://www.blogger.com/profile/07192247387107228743noreply@blogger.com11tag:blogger.com,1999:blog-8569641350490898348.post-14265045994551395882013-09-17T21:52:00.000-04:002013-09-17T21:52:23.938-04:00Destination... Mud Run...Me # 3<div dir="ltr" style="text-align: left;" trbidi="on">
I am going to steel this first part from <a href="http://hemophiliaadventure.blogspot.com/2013/09/destination-me-day-3.html?spref=fb" target="_blank">Captain Jackson's Mama</a>... altering to fit yours truly, of course.<br />
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<span style="background-color: black; color: white;"><span style="font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; font-size: 13px; line-height: 18px;">If your late to the Destination</span>...Mud Run..<span style="font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; font-size: 13px; line-height: 18px;"> Me </span><span style="font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; font-size: 13px; line-height: 18px;">... I'll fill you in". </span>Hallie<span style="font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; font-size: 13px; line-height: 18px;"> started Destination Me as a way to gain some "Me" time you can read about </span>her journe</span><span style="background-color: black;"><span style="color: white;">y</span> </span><a href="http://www.theprincessandthepump.com/2013/09/destination-me.html" target="_blank"><span style="background-color: black;">here</span></a><span style="background-color: black; color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; font-size: 13px; line-height: 18px;"> </span><span style="color: white;"><span style="font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; font-size: 13px; line-height: 18px;"><span style="background-color: black;">and my commitment </span></span><span style="background-color: black;">to the journey and why I want to do it</span><span style="background-color: black; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; font-size: 13px; line-height: 18px;"> </span><a href="http://www.mydiabetic-child.com/2013/09/destination-mud-run-me.html" style="background-color: black;" target="_blank">here</a><span style="background-color: black; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; font-size: 13px; line-height: 18px;">. </span></span><br />
<span style="background-color: white; color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; font-size: 13px; line-height: 18px;"><br /></span>
So how is it going...<br />
<br />
If you remember, things didn't get going until right before <a href="http://www.mydiabetic-child.com/2013/09/destination-mud-run-me-2.html" target="_blank">post # 2</a>... that whole Monday thing and all. Since then, I have continued to walk, not everyday, but the treadmill is still getting some action. I have come to the conclusion that no matter what I tell myself... if I do not get up early and walk, its not going to happen that day. I need to find a way to fix that since diabetes doesn't always get along with getting up at 5:45 am.<br />
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I have continued to eat better and have been sticking to logging for the Well Challenge I joined at work. As of yesterday, I am down 3 lbs. I am pretty excited about that.<br />
<br />
I definitely need to drink more water. I fell off the wagon this weekend and went all crack addict on the Diet Coke. I regretted it on Monday when my hands swelled up from all the "water retention".<br />
<br />
Sleep... I challenged myself to sleep. Really? Who am I kidding. I tried. I promise I did... and I even followed through and went to bed at 11:00 that first night. Too bad I woke up at some redonculous time in the middle of the night and couldn't go back to sleep. My body just doesn't know how to act with more than a few hours at a time. After that, I think I managed to get in bed early one other night this past week... I will continue to work on that.<br />
<br />
So there you have it... the good, the bad and the fall of the wagon.<br />
<br />
This week I think I am just going to continue with what I am working on. I didn't master the whole sleep thing and lord knows I need to work o my water issues. I think that's worth an extra week of trying. On top of that I will add in that I need to walk more so I can start running... eventually.<br />
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A big <span style="font-family: inherit; font-size: x-large;">THANKS</span> to <a href="http://hemophiliaadventure.blogspot.com/2013/09/destination-me-day-3.html?spref=fb" target="_blank">Captain Jackson's Mama</a> for motivating me to get this week post out.<br />
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Lorahttp://www.blogger.com/profile/07192247387107228743noreply@blogger.com2tag:blogger.com,1999:blog-8569641350490898348.post-64107190862447591192013-09-11T22:21:00.000-04:002013-09-11T22:22:18.941-04:00Destination... Mud Run... Me #2<div dir="ltr" style="text-align: left;" trbidi="on">
And here we are... post #2 of destination me (<a href="http://www.theprincessandthepump.com/2013/09/destination-me-week-2.html" target="_blank">inspired by Hallie</a>). I will be honest... I have a tradition(if you will) about dieting. I like to start dieting on Monday. I secretly do this so I can binge eat until i'm sick or until all of the good "crap" is out of the house.<br />
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Can I call that last weeks goal?<br />
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If so, keep tradition... check!<br />
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I did actually start on Monday, by the way.<br />
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-One thing <a href="http://www.theprincessandthepump.com/2013/09/destination-me-week-2.html" target="_blank">Hallie</a> and I share is our love for coke, I am a diet girl, but I also prefer my diet coke over coffee any day. That said, I do know I have to give it up in order to reach my goal and I also know if I have it in the house I will never drink anything but that.<br />
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I drank my last diet coke Monday morning. We will see how that works out for me. (I'm actually breaking out in colds sweats just thinking about it... #feelinglikeacrackhead)<br />
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Yikes... enough about that before I ditch this post and make a Sonic run.<br />
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-I decided to sign up for the annual "Well Challenge(WC)" at work. The WC is an 8 week challenge. You can choose a goal, such as: weight challenge, fitness challenge, fruit and veggie challenge and a few more. I choose the weight challenge, of course, because that will make me focus on both diet and exercise all at once. I am required to log my daily food and exercise... so far, I have been on it!!! In the end, the ultimate goal in this challenge is to loose 5% of my current weight... that puts me right around 8-9lbs to lose in the 8 weeks. Then maybe... I could even win a trip, but I won't hold my breath on that one.<br />
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Today they sent me a motivational "badge" for sticking with it for 3 whole days... HOLLA!<br />
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Now here's the biggie... are you sitting down?<br />
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I have no idea how, but I also managed to drag my tired rump out of bed at 5:45am the past three days. THEN, I actually put my shoes on and walked on the treadmill. Granted, only for 30 min a day and I barely made it 2 miles, but hey... that is 130 min further than I was walking last week. Baby steps peeps!!! I will make it through that mud run even if I have to crawl.<br />
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Goal... I'm suppose to set one, right?<br />
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I think I may go with Hallie on this one. I am going to try and go to bed. I get an average of 4 1/2 - 5 hours of sleep per night. I need to change that if I want to reach my goal. I need sleep. My body needs sleep. Wish me lots of luck with this one... I probably have a better chance of giving up the diet coke.<br />
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Until next week.<br />
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Lorahttp://www.blogger.com/profile/07192247387107228743noreply@blogger.com3tag:blogger.com,1999:blog-8569641350490898348.post-80907496141975582042013-09-05T00:28:00.000-04:002013-09-05T00:29:58.023-04:00Destination... Mud Run... Me!<div dir="ltr" style="text-align: left;" trbidi="on">
We all know how much a diagnosis changes our lives. If you're anything like me, your whole world became about just trying to function or maybe just trying to not screw up. Since I wasn't on top of things like I always had been, something had to give... that something included me.<br />
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In a little more than a month (10/21), we will have lived with diabetes for 5 years. 5 years ago, I lost it. I lost myself and my ability to give a crap about my health. Then just when I felt like I had this... another <a href="http://www.mydiabetic-child.com/2011/04/not-just-fast-drop-after-all.html" target="_blank">diagnosis</a> came along and pushed me back a bit. Then, recently, I made a plan with a group of girls at work to sign up for a 5k mud run in February. I thought... I can do this. 5k... no problem.<br />
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Only, there is now a new diagnosis hanging over our heads and its kind of kicking my butt, just a little.<br />
On August 19th Justin went for an x-ray and on August 21st, I got a call from the Doctor... Justin has Scoliosis.<br />
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This is the first time I am sharing the news. I haven't had the heart to even tell him. How can I? He has so much on his plate already and whats the point until we have to do something about it; which may be sooner rather than later since he is still complaining about his back hurting.<br />
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I'll be honest, my first thought was to stick my head back in the hole its spent so much time in the past 5 years, but I need to cut that out. I need to get my shit together and start taking care of myself so that I can face this new challenge... whatever that turns out to be.<br />
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SOOOO... I am going to do that mud run in February. For me. To help get my head straight and keep it out of that hole.<br />
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It just so happens that the super awesome Hallie over at The Princess and the Pump has started a new challenge, called "<a href="http://www.theprincessandthepump.com/2013/09/destination-me.html" target="_blank">Destination Me</a>". My destination may start off with a little different motivation, but on my way to "me", I'm going to rock that mud run.<br />
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Stop by Hallie's post <a href="http://www.theprincessandthepump.com/2013/09/destination-me.html" target="_blank">HERE</a> to learn a little more about what she's doing and why. THEN sign up to join her on this journey.<br />
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Lorahttp://www.blogger.com/profile/07192247387107228743noreply@blogger.com5tag:blogger.com,1999:blog-8569641350490898348.post-16188725014038177492013-08-03T04:43:00.000-04:002013-08-03T04:43:23.540-04:00For the Record...<div dir="ltr" style="text-align: left;" trbidi="on">
Let me share a little bit about myself...<br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEil-_B1RauWh1SZX_0Y7vyXRw2UgmTjDm4Pimis1-57wYtLP1GaR_NCpoDyC-uanmKmzSeSuY_DL5Oobc4cmUEvdS8ZnlXm-TQNPD2VDJ9s1EVrojf8IyL5d_F6kz1sYO8OA1SDX_7obwc/s1600/IMG_1453.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEil-_B1RauWh1SZX_0Y7vyXRw2UgmTjDm4Pimis1-57wYtLP1GaR_NCpoDyC-uanmKmzSeSuY_DL5Oobc4cmUEvdS8ZnlXm-TQNPD2VDJ9s1EVrojf8IyL5d_F6kz1sYO8OA1SDX_7obwc/s1600/IMG_1453.JPG" height="200" width="150" /></a></div>
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Overall, from the outside looking in, I am a happy-go-lucky positive person. I'm goofy and I have a habit of befriending those who just happen to be sitting beside me. I speak up as the voice of reason and, even if do not agree, I always try to see all points of view and even stick up for the person(s) who are not there to do it for themselves.<br />
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I do, from time to time, love to people watch, but it is all in good fun I promise (shame on me, I know).<br />
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I enjoy volunteering and I have taught my kids the value of doing the same. I also ALWAYS do my best to offer a few kind, uplifting words to anyone who needs it. However, if I just don't have it in me that day... I am considerate enough to walk away or click the "X" in the upper right hand corner of the screen. <br />
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That is me, on the outside... in short!<br />
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From the inside I am full of worry... I haven't always been this way on the inside. At one time, my inside mimicked the outside and all of its happy-filled, smiley silliness. That side of me still breaks free from time to time, but something happened when Justin was just a baby, and then another and another. Along with that came worry as diagnosis after diagnoses was brought to our attention.<br />
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These days...<br />
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My heart breaks, just a little, every time I watch Justin have a seizure. I can relive them in my head, over and over, at anytime and without warning.<br />
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My heart breaks, just a little, every time he has a low. Knowing what diabetes has the potential of doing comes rushing to the forefront of my mind and I can't help but wonder if I could have done something, anything, to avoid it.<br />
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My heart breaks, just a little, every time he's high. Man, is he going to throw up? How can I get his belly to stop hurting? Maybe I should have changed his sight sooner.<br />
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My heart breaks, just a little, every time he looks sad. The look on his face is etched in my mind for unsolicited instant replay.<br />
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Justin won't know how I am feeling on the inside because I hide it. I lie with a straight face(or maybe a goofy one). From the outside, we fix it, forget it and move on. But on the inside, there is a mental toll that comes along with all he faces. That part is unavoidable sometimes; no matter how positive you make yourself out to be... you are also human.<br />
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Yesterday I made a comment on one of<a href="http://www.theprincessandthepump.com/2013/08/the-outsiders-what-is-normal.html" target="_blank"> Hallie's post</a>. I made reference to the fact that I think the stuff that our kids deal with IS a big deal to them. THEY are the ones on the sidelines testing and treating lows. I said that "Mentally. Emotionally. It is big deal." I would Never say that to Justin, but lets face it, their friends don't exactly sit around waiting for them. Even if our kids don't expect them to, it still kind of sucks. This is MY opinion and I shared it.<br />
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The toll of being "different" has become more and more evident as Justin gets older. The challenges now are different than they were when he was 7 or 8. He sees more, he hears more and he knows more. It doesn't matter how good we are at being positive... he has his own thoughts. It doesn't matter how much we act as if "its no big deal"... this isn't easy for him. Part of his life, yes, but not exactly easy.<br />
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I suppose as each year passes we will face a new or different set of challenges, not only medically, but normal teenage/growing up challenges too. Some of which will be magnified by the medical stuff; that is just simple fact. I have no doubts that we will still have many triumphs, as we do now, but that will not change the fact that the challenges need attention too. That's just life in general, right?<br />
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Anyways, back to the comment on Hallie's post...<br />
There was a response to my comment... a kind of insulting one actually. <br />
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I was judged and it kind of pissed me off. There was assumptions made about how I feel about Justin's diabetes. You shouldn't judge what you do not know. This holds true for everyone.<br />
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It was said that "<span style="font-family: 'Coming Soon'; font-size: 16px; line-height: 22px; text-align: justify;">he can participate, be involved and be valued by society regardless of the condition". WTH?!?! What makes this person think that he isn't a valued part of society already? </span><br />
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<span style="font-family: 'Coming Soon'; font-size: 16px; line-height: 22px; text-align: justify;">I can assure you he/we are already a valued part of society... we are alive aren't we? I can assure you we live in a happy house. We laugh and joke and do fun family stuff. We are silly. I torture Justin by taking him shopping and making him do chores(I know, I am a terrible mother). We are close. We are encouraging. We are supportive. We also have to face diabetes and epilepsy along with some other stuff... and that IS a big deal, no matter how hard I try to pretend its not.</span><br />
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Lorahttp://www.blogger.com/profile/07192247387107228743noreply@blogger.com9tag:blogger.com,1999:blog-8569641350490898348.post-18712601327152087612013-07-28T22:58:00.000-04:002013-07-29T00:34:35.679-04:00#CWDFFL13<div dir="ltr" style="text-align: left;" trbidi="on">
I am probably the last blogger in the world to write about FFL 2013 but hey... nice girls finish last, right? *Oh shut it... I AM NICE!*<br />
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To be honest, I keep writing and deleting over and over... I've been doing that for days. I guess there are really no words to adequately describe what its like.<br />
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So maybe I can tell a little about our week with the photos from my phone...<br />
**disclaimer: not all photos posted below have been approved, sorry ladies**<br />
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So Meri posted a pic similar to this one, showing us with a perfect pose and great smiles...</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEipkTaLx63Z3HFje9YgbPLUuEMr88XdeDudSNZ62t3yBvs2Y13bgWHUOVR4FTgwJd5Vf8qBi95KPIKZ-OzgNRiHcbJWa0TgD4cE8PAdXZstzlc_TsQ3sLOuAnZOy8LT7jDa-r2jBoFCui0/s1600/IMG_1472.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="104" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEipkTaLx63Z3HFje9YgbPLUuEMr88XdeDudSNZ62t3yBvs2Y13bgWHUOVR4FTgwJd5Vf8qBi95KPIKZ-OzgNRiHcbJWa0TgD4cE8PAdXZstzlc_TsQ3sLOuAnZOy8LT7jDa-r2jBoFCui0/s320/IMG_1472.JPG" width="320" /></a></div>
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Truth is...</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjEnJXjg_04WUMMXGc2EgEowF6zEigG9IBcZHDqecBR_QD6TtGoUgaSNKn2jyXdJS-yYj90vuDo6Es_gSe7H_Rb_hxwkc-aLgjBEV2cil4wjkkXReU2eQbTHEK2_cxS1ASzqX0Idr3FXPE/s1600/IMG_1465.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjEnJXjg_04WUMMXGc2EgEowF6zEigG9IBcZHDqecBR_QD6TtGoUgaSNKn2jyXdJS-yYj90vuDo6Es_gSe7H_Rb_hxwkc-aLgjBEV2cil4wjkkXReU2eQbTHEK2_cxS1ASzqX0Idr3FXPE/s320/IMG_1465.JPG" width="320" /></a></div>
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We had to take like 20 shots because we couldn't keep it together.<br />
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A good mom would have been with Justin while he did his retina screening...<br />
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<a href="http://1.bp.blogspot.com/-YusHC7HVpJU/UfHJroJF_1I/AAAAAAAAC1M/lXtuKG5-z28/s1600/IMG_1460.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="http://1.bp.blogspot.com/-YusHC7HVpJU/UfHJroJF_1I/AAAAAAAAC1M/lXtuKG5-z28/s320/IMG_1460.JPG" width="320" /></a></div>
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Truth is...</div>
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This girl was out in the hallway and I ditched him :/<br />
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I think he still loves me...<br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjposvquoMZDLYy-Myq875Q8BdvmoS7ShQuWVEwaQxw1ghyphenhyphenmmLIdUih8qNS-ha427-wzEw4N3HmzhlJe6DlJMUjK8p0AUOjwmjSnbjF8E66sJWN1XDYcdFQfTr5BqAJfHfOH7bVeQuXoYo/s1600/IMG_1476.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjposvquoMZDLYy-Myq875Q8BdvmoS7ShQuWVEwaQxw1ghyphenhyphenmmLIdUih8qNS-ha427-wzEw4N3HmzhlJe6DlJMUjK8p0AUOjwmjSnbjF8E66sJWN1XDYcdFQfTr5BqAJfHfOH7bVeQuXoYo/s320/IMG_1476.JPG" width="240" /></a></div>
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and I think he loves <a href="http://www.ourdiabeticlife.com/" target="_blank">Meri</a> too.<br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiDy734ZVnGO040FgmPuZIlS2PJ3aKw4QPrWRi3Mw78W9jBZRnETrGQJZkHCnIWfsOdM97F1K970HS4kyGm7OS5XS-1ldb2VAG4xuFHqAwDhh1qL6XiSyMMkg3Wxu5phwDkTiYDYh55goQ/s1600/IMG_1537.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiDy734ZVnGO040FgmPuZIlS2PJ3aKw4QPrWRi3Mw78W9jBZRnETrGQJZkHCnIWfsOdM97F1K970HS4kyGm7OS5XS-1ldb2VAG4xuFHqAwDhh1qL6XiSyMMkg3Wxu5phwDkTiYDYh55goQ/s320/IMG_1537.JPG" width="240" /></a><br />
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I wanted to be sure to get pics with all my favorite Mamas...<br />
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Truth is...<br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg2hKw6zhrwyVIEI14eycALrtmnY7MTSZoMtbjs-hn_EAE57WAnQX1ZFDLgRjf4pfV3AclJrPcX5aE1rq6DLTFHYtJMdcCz4YeoxJ4KAEIojR0p84aRa4bLjOW8aesLh4fKvbt4lvHDnpg/s1600/ffl2013.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg2hKw6zhrwyVIEI14eycALrtmnY7MTSZoMtbjs-hn_EAE57WAnQX1ZFDLgRjf4pfV3AclJrPcX5aE1rq6DLTFHYtJMdcCz4YeoxJ4KAEIojR0p84aRa4bLjOW8aesLh4fKvbt4lvHDnpg/s320/ffl2013.jpg" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">photo courtesy of <a href="http://momentsofwonderful.com/" target="_blank">Sara</a></td></tr>
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I got a little distracted by the Mojitos.<br />
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DMama nicely holds light up mo-hawks for kids...<br />
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DMama's can not resist wearing them while posing oddly for the camera.<br />
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I thought for sure Justin would make some kind of Mindcraft reference when I spotted him writing on the Dexcom wall.<br />
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Other than the fact that he spells about as well as his mama, it was pretty sweet <3 p=""><br />
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I wasn't sure what to expect when we packed our bags for our first "official" FFL conference.<br />
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Truth is...<br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi1Rinv4b9YCHlTsUCQyoEZ5Cf-CdU2wn-xU8dHKwwL8wa1Pdj_gqlMUjjTJ4AAkdTRS-VO6Hmx5hbi41IBOLPXaOyUfhAvpwiEH-Tht_iHYHw4cFI1zwsTf1YPj8TgTOOkOtC1Z5XsK04/s1600/ffl7.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="213" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi1Rinv4b9YCHlTsUCQyoEZ5Cf-CdU2wn-xU8dHKwwL8wa1Pdj_gqlMUjjTJ4AAkdTRS-VO6Hmx5hbi41IBOLPXaOyUfhAvpwiEH-Tht_iHYHw4cFI1zwsTf1YPj8TgTOOkOtC1Z5XsK04/s320/ffl7.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Photo courtesy of<a href="http://www.getmypix.net/" target="_blank"> Cooperate Image Photography</a></td></tr>
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We had a blast!!</div>
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Even the hubbies had fun.</div>
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****</div>
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Both family near...</div>
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and those that live far...<br />
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I wouldn't trade one second of time I spent with you.<br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhCVvN4cvSBuxT4ONX_4unS5JDdchXn-mVJ2uopouqAHfP7bEEuMPGHQ59RQG-eeIywnwOcDoYSps3T42_4W3U0diDs48eRQ8-nruTW6edB8cORQalseFNee0oSqqjNy80XNkcObHZ8BwQ/s1600/ffl2.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="213" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhCVvN4cvSBuxT4ONX_4unS5JDdchXn-mVJ2uopouqAHfP7bEEuMPGHQ59RQG-eeIywnwOcDoYSps3T42_4W3U0diDs48eRQ8-nruTW6edB8cORQalseFNee0oSqqjNy80XNkcObHZ8BwQ/s320/ffl2.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Photo courtesy of <a href="http://www.getmypix.net/" target="_blank">Cooperate Image Photography</a></td></tr>
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ALL of you...<br />
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Maybe next year <a href="http://momentsofwonderful.com/" target="_blank">Sara</a> can come too :)</div>
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Lorahttp://www.blogger.com/profile/07192247387107228743noreply@blogger.com9tag:blogger.com,1999:blog-8569641350490898348.post-59834626802806086892013-06-04T00:01:00.000-04:002013-06-04T00:01:05.833-04:00Dear Mr. AP...<div dir="ltr" style="text-align: left;" trbidi="on">
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An open letter to an Assistant Principal...<br />
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Dear Mr. AP,<br />
I think you've lost sight of why were here. We are not here to be a winner in the game of who's right. Were not here to prove each other wrong or show each other whose boss. We are not here for a pissing match. Nor were we sent to make each others life miserable.<br />
<br />
We are here for a child. A child that YOU should WANT to succeed. <br />
<br />
I understand that you have been "doing this a long time", but don't dismiss me as being ignorant.<br />
Maybe you have been doing this for a while, but so have I. The difference, however, is that I have more to loose. I fight with my heart because he, who I fight for, is my life and I can not, will not let him down. I can not fail him. I will go down swinging at every obstacle you throw at me and I will succeed in the end because it is whats right and there have been laws put into place to protect him from people just like you.<br />
<br />
Also, I think you lack common courtesy or decency or maybe both. Maybe you just have no balls, I don't know. You have been against us all year, and today, when we learned YOU were in the wrong, you had someone else call. I think it should have been you, eating a slice of humble pie with your apology. Seems you are not the "expert" you thought you were. Also seems like you lack the ability to take responsibility for your actions and/or mistakes. You are suppose to be a roll model, Mr. AP, but I would prefer MY child to look up to a man with manners, kindness and a little empathy.<br />
<br />
Having said all of this, I do hope, Mr. AP, that maybe, just maybe, when August rolls around... we can start the new year fresh. Positive even. With answers in place of the brick walls. With "we can" in place of "we can't". I hope that we can focus on the reason we are here. I hope we can move past wanting to be right and DO what is right for a child that needs us to work as a team.<br />
<br />
He is counting on us, however, if you choose not to change... he will always have me and I will not let him down. You have my word on that.<br />
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Lorahttp://www.blogger.com/profile/07192247387107228743noreply@blogger.com5tag:blogger.com,1999:blog-8569641350490898348.post-87820955440392768732013-05-23T02:43:00.004-04:002013-05-23T02:45:38.084-04:00Choosing...<div dir="ltr" style="text-align: left;" trbidi="on">
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<span style="font-family: georgia, serif; font-size: 14px; line-height: 18px;"><span style="background-color: black; color: magenta;">“The problem, simply put, is that we cannot choose everything simultaneously. So we live in danger of becoming paralyzed by indecision, terrified that every choice might be the wrong choice.” </span></span><span style="color: magenta; font-family: georgia, serif; font-size: 14px; line-height: 18px;">― </span><a href="http://www.goodreads.com/author/show/11679.Elizabeth_Gilbert" style="font-family: georgia, serif; font-size: 14px; line-height: 18px; text-decoration: none;">Elizabeth Gilbert</a></div>
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Here I am again. It's 1:30 in the morning and I can't sleep. My head and stomach are in knots because there is a.n.o.t.h.e.r meeting.<br />
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Freaking meetings... Kill me now!<br />
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This time it is to come up with a plan for standardized testing. Last month, Justin's 504 wasn't followed during FCAT's. One day his bg wasn't tested at all and the next they allowed him to start testing with a bg of 61.<br />
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I spent four weeks asking for someone to get back with me so that we could "find a resolution".<br />
And for four weeks those calls/emails went unanswered.<br />
<br />
Until I emailed the county superintendent.<br />
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Unfortunately, you could tell by the tone in her voice, the AP was quite "ticked" when she called me. I pray this doesn't set the tone when we meet next week. #nothopeful<br />
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I worry that this will be a bashing session, rather than a solution meeting. Because that is exactly what the phone call was. I am not ignorant to the reality that the challenges over the past school year have damaged the lines of communication(if there really were any to begin with). Its been a rough year. Lot's of "that is not our responsibility" and you need to contact so and so... who send you to so and so #2 who then sends you to so and so #3 who ultimately send you back to the original so and so.<br />
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I have two choices here... keep him there or move him. Each option is a win/loose situation.<br />
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Keeping him there...<br />
I honestly don't think they are ever going to work with me. I've been labeled to the point where they don't even bother to answer an email. All for advocating for my child. Justin has been labeled as well. My confidence in "the system" is gone. Justin is struggling emotionally and it's not worth all this stress on either of us. Can I even survive two more years of this?<br />
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However, his sister is there. I don't have to worry about him on the bus because I know she is watching him. I don't have to worry about transportation. He has friends there... kids that he has gone to school with since kindergarten. It's pure bullshit that he should be yanked out of his neighborhood school because they can't get their shit together. He.has.the.right.to.be.there!<br />
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If I move him...<br />
I don't know how I am going to get him back and forth. This will be a challenge for the next two years. He will not go to high school with any of the kids at the new school so he will have to start all over socially. This is a big challenge for a shy kid with confidence/emotional struggles(and she begins to cry). I would have to choose a new school and deal with all the worries of making the right choice. Justin and I would have to live with the consequences if I choose wrong.<br />
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But, I could start fresh with a new "team" that may be more willing to help him( that is if they haven't been warned about his witch of a mother). A team that may be more compassionate. I would start a new year hopeful. Maybe I could even stop crying and get some sleep. Maybe I could even stop stress eating... MAYBE.<br />
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I just don't know what to do. You can not imagine how much this is killing me. I only want what is best for him. I only want him to succeed and be happy. But reality is I am am failing. He is struggling and he is unhappy. He needs a break. WE need a break.<br />
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Lorahttp://www.blogger.com/profile/07192247387107228743noreply@blogger.com4tag:blogger.com,1999:blog-8569641350490898348.post-64459905459187269182013-05-15T22:37:00.000-04:002013-05-20T22:38:47.333-04:00Memories... Diabetes Blog Week <div dir="ltr" style="text-align: left;" trbidi="on">
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<span style="background-color: white; color: #755a2a; font-family: 'PT Sans'; font-size: 16.363636016845703px; line-height: 25.596590042114258px;">Today's topic...</span><br />
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<span style="background-color: black; color: magenta;"><span style="font-family: 'PT Sans'; font-size: 16.363636016845703px; line-height: 25.596590042114258px;">Click for the </span><a href="http://www.blenza.com/linkies/links.php?owner=dblogweek&postid=02May2013f" style="font-family: 'PT Sans'; font-size: 16.363636016845703px; font-weight: bold; line-height: 25.596590042114258px;" target="_blank">Memories - Wednesday 5/15</a><span style="font-family: 'PT Sans'; font-size: 16.363636016845703px; line-height: 25.596590042114258px;"> Link List</span></span></div>
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<span style="background-color: black; color: magenta;"><span style="font-family: 'PT Sans'; font-size: 16.363636016845703px; line-height: 25.596590042114258px;">Today we’re going to share our most memorable diabetes day. You can take this anywhere.... your or your loved one's diagnosis, a bad low, a bad high, a big success, any day that you’d like to share. (Thanks to Jasmine of </span><a href="http://silverlined-details.blogspot.com/" style="font-family: 'PT Sans'; font-size: 16.363636016845703px; font-weight: bold; line-height: 25.596590042114258px;" target="_blank">Silver-Lined</a><span style="font-family: 'PT Sans'; font-size: 16.363636016845703px; line-height: 25.596590042114258px;"> for this topic suggestion.)</span></span><br />
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<span style="background-color: black;"><span style="color: white;"><span style="font-family: 'PT Sans'; font-size: 16.363636016845703px; line-height: 25.596590042114258px;">I can remember it so well... Our first "fighting low"</span></span></span><span style="background-color: black; color: white; font-family: 'PT Sans'; font-size: 16.363636016845703px; line-height: 25.596590042114258px;">. You know what I'm talking about; the kind of low that makes them fight you. Makes them refuse to drink. The kind that makes you panic and question if you're capable of going for the Glucagon if it comes to that. </span></div>
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<span style="background-color: black;"><span style="color: white;"><span style="font-family: 'PT Sans'; font-size: 16.363636016845703px; line-height: 25.596590042114258px;"><br /></span></span></span></div>
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<span style="background-color: black;"><span style="color: white;"><span style="font-family: 'PT Sans'; font-size: 16.363636016845703px; line-height: 25.596590042114258px;">It went a little something like this...</span></span></span></div>
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<span style="background-color: black;"><span style="color: white;"><span style="font-family: PT Sans;"><span style="line-height: 25.596590042114258px;">It was summer. Justin and I were in the school's media center folding and labeling the newsletters so that we could get them mailed out. Other than one other mom, who was helping, we were alone. To be honest, I really didn't know her that well so I am sure it was a shock when I started screaming and my then 8 year old son for no obvious reason. Not obvious to an "outsider" anyways.</span></span></span></span></div>
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<span style="background-color: black;"><span style="color: white;"><span style="font-family: PT Sans;"><span style="line-height: 25.596590042114258px;">I promise I didn't flip out right away, after all, we were at least 7 or so months in and I had this all under control by then, right? **Wishful denial might be more like it**. </span></span></span></span></div>
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<span style="background-color: black;"><span style="color: white;"><span style="font-family: PT Sans;"><span style="line-height: 25.596590042114258px;">I can see it in my head. Sitting there folding away, the happy little mommy volunteer, looking at her son getting a little pale. </span></span></span></span></div>
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<span style="background-color: black;"><span style="color: white;"><span style="font-family: PT Sans;"><span style="line-height: 25.596590042114258px;">"Justin, you okay?"</span></span></span></span></div>
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<span style="background-color: black;"><span style="color: white;"><span style="font-family: PT Sans;"><span style="line-height: 25.596590042114258px;">"Justin"</span></span></span></span></div>
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<span style="background-color: black;"><span style="color: white;"><span style="font-family: PT Sans;"><span style="line-height: 25.596590042114258px;">"JusTin" - a little hint of aggravation forming because this is not funny to me. </span></span></span></span></div>
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<span style="background-color: black;"><span style="color: white;"><span style="font-family: PT Sans;"><span style="line-height: 25.596590042114258px;">"JUSTIN" - dragging him outside to yell because he's just not listening to me.</span></span></span></span></div>
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<span style="background-color: black;"><span style="color: white;"><span style="font-family: PT Sans;"><span style="line-height: 25.596590042114258px;">And the fighting begins...</span></span></span></span></div>
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<span style="background-color: black;"><span style="color: white;"><span style="font-family: PT Sans;"><span style="line-height: 25.596590042114258px;">An eternity passes as a mom fights her 8 year old son. Pleading with him to drink.</span></span></span></span></div>
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<span style="background-color: black;"><span style="color: white;"><span style="font-family: PT Sans;"><span style="line-height: 25.596590042114258px;">Her mind is spinning with what to do next. Do I have the Glucagon? Do I have the cake gel? Do I have it in me to use it? Have I practiced enough?</span></span></span></span></div>
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<span style="background-color: black;"><span style="color: white;"><span style="font-family: PT Sans;"><span style="line-height: 25.596590042114258px;">She's getting madder. Why? The anger can only be out of pure fear.</span></span></span></span></div>
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<span style="background-color: black;"><span style="color: white;"><span style="font-family: PT Sans;"><span style="line-height: 25.596590042114258px;">"Dear God, Justin, drink the juice"</span></span></span></span></div>
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<span style="background-color: black;"><span style="color: white;"><span style="font-family: PT Sans;"><span style="line-height: 25.596590042114258px;">"PLEASE" </span></span></span></span></div>
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<span style="background-color: black;"><span style="color: white;"><span style="font-family: PT Sans;"><span style="line-height: 25.596590042114258px;">And just as quick as it started it was over. </span></span></span></span></div>
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<span style="background-color: black;"><span style="color: white;"><span style="font-family: PT Sans;"><span style="line-height: 25.596590042114258px;">Juice was consumed. </span></span></span></span></div>
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<span style="background-color: black;"><span style="color: white;"><span style="font-family: PT Sans;"><span style="line-height: 25.596590042114258px;">The Mom's heart was broken and full of guilt for yelling. But what else could she do?</span></span></span></span></div>
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<span style="background-color: black;"><span style="color: white;"><span style="font-family: PT Sans;"><span style="line-height: 25.596590042114258px;">She was terrified.</span></span></span></span></div>
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<span style="background-color: black;"><span style="color: white;"><span style="font-family: PT Sans;"><span style="line-height: 25.596590042114258px;">And she will never forget that feeling for as long as she lives.</span></span></span></span></div>
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Lorahttp://www.blogger.com/profile/07192247387107228743noreply@blogger.com1tag:blogger.com,1999:blog-8569641350490898348.post-61919716338889660322013-05-14T19:41:00.001-04:002013-05-14T19:44:22.572-04:00We, the Undersigned... Diabetes Blog week - day 2<div dir="ltr" style="text-align: left;" trbidi="on">
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<span style="background-color: black;">Today's topic...</span><br />
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<span style="background-color: black; color: magenta;"><span style="font-family: 'PT Sans'; line-height: 25.59375px;">Recently various petitions have been circulating the Diabetes Online Community, so today </span><a href="http://www.wikihow.com/Write-a-Petition" style="font-family: 'PT Sans'; font-weight: bold; line-height: 25.59375px;" target="_blank">let’s pretend to write our own</a><span style="font-family: 'PT Sans'; line-height: 25.59375px;">. Tell us who you would write the petition to – a person, an organization, even an object (animate or inanimate) - get creative!! What are you trying to change and what have you experienced that makes you want this change? (Thanks to Briley of </span><a href="http://indpendence.com/" style="font-family: 'PT Sans'; font-weight: bold; line-height: 25.59375px;" target="_blank">inDpendence</a><span style="font-family: 'PT Sans'; line-height: 25.59375px;"> for this topic suggestion.)</span></span></div>
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<span style="font-family: PT Sans;"><span style="color: white; line-height: 25.59375px;">IF I were able to petition anything, I would petition the perfect 504 plan. Yeah, an "air tight" 504 plan. It would cover everything from testing to lock downs and everything before, after and in between. It would be a standard plan, based on your child's disability/disabilities. It would be valid no matter where you lived. It would be binding and non negotiable. It would fit everyone... "not like a one size fit all" plan or anything... more like a "we gotcha covered no matter what plan". And if the school(s) didn't follow it... there would be serious consequences for those involved. </span></span></span><br />
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<span style="font-family: PT Sans;"><span style="line-height: 25.59375px;">I think some of these schools need a wake up call. I think some people need a new lesson in humanity and understanding. I am so tired of fighting for reasonable accommodations. Things that SHOULD be a no brainer are a fight ... Wait! The school does not like to use that term, challenge, everything is a challenge. I call Bull Shit!!! I say if you have disabilities, even if they are invisible, you should be able to get the accommodations you need. Tools to help you be successful in spite of the challenges you face. The absolute last thing we should be given is a hard time... we have enough of a hard time... We don't need anyone to give it to us.</span></span></span><br />
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<span style="font-family: 'PT Sans'; line-height: 25px;">Signed,</span><span style="font-family: PT Sans;"><span style="line-height: 25.59375px;"><br /></span></span><span style="font-family: PT Sans;"><span style="line-height: 25px;">Crapstix... I think this just turned into a rant :/</span></span></span><br />
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Lorahttp://www.blogger.com/profile/07192247387107228743noreply@blogger.com2tag:blogger.com,1999:blog-8569641350490898348.post-32889072893101599932013-05-13T07:15:00.000-04:002013-05-13T07:15:17.662-04:00Share and Don't Share... Diabetes blog week day 1<div dir="ltr" style="text-align: left;" trbidi="on">
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<span style="color: magenta; font-size: x-small;">Often our health care team only sees us for about 15 minutes several times a year, and they might not have a sense of what our lives are really like. Today, let’s pretend our medical team is reading our blogs. What do you wish they could see about your and/or your loved one's daily life with diabetes? On the other hand, what do you hope they don't see? (Thanks to Melissa Lee of <a href="http://www.sweetlyvoiced.com/" style="font-weight: bold;" target="_blank">Sweetly Voiced</a> for this topic suggestion.)</span></div>
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I think I am going to have to give a big shout out to Justin's endo on this one... we always get more than 15 minutes with him. If we have questions... he stays to answer them. If changes need to be made... he stays to change them. I have never felt rushed or unheard.<br />
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He is, however, very serious. As a mom I appreciate that, but I am also a bit scared of him and I can see how that seriousness could hinder an open relationship between him and Justin later on. Will Justin feel comfortable being up front an honest? Or will he play it safe so that he doesn't get the ass chewing of his life? <br />
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Our endo is very quick to tell you that your doing a good job. I have also heard he is pretty straight forward and/or blunt when you're not. Thank goodness I've never been on the receiving end of that!!<br />
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Again, as a mom, I kinda appreciate that. I want someone other than me to tell Justin when he needs to get his shit together. But do I really want that? Should I really want that? OR... should I want an endo that is open with no judgement? Fine line, I suppose.<br />
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So if I had to say anything, it would be...<br />
I hope that you are "softer" than you appear. I hope that with all that seriousness, comes understanding. I hope that when you chew a chunk of my sons ass, you do it with compassionate concern and I hope you give empathy when he needs it and tough love when its warranted.<br />
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Happy Monday!<br />
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Lorahttp://www.blogger.com/profile/07192247387107228743noreply@blogger.com1tag:blogger.com,1999:blog-8569641350490898348.post-90703586242573906492013-05-11T13:01:00.000-04:002013-05-11T13:01:10.145-04:004th Annual Diabetes Blog Week...<div dir="ltr" style="text-align: left;" trbidi="on">
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Monday kicks off the 4th annual Diabetes Blog week, hosted by the awesome Karen over at <a href="http://www.bittersweetdiabetes.com/" target="_blank">Bitter~Sweet</a>.<br />
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Click on the banner below to get a sneak peek at this weeks topics and to see a list of all the awesome bloggers who will be joining in the fun.<br />
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Thank you, Karen, for hosting such a great event :)<br />
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On a more personal note, I am sure going to do my best to blog every day, but no promises... its going to be a crazy week for me. I am going to play the role of a single, working, dmama... YIKES! I think I might even have to go grocery shopping too. Double Yikes!!!! Now before you get a funky look on your face... No, I don't do the grocery shopping. I write the list and Anthony pushes the cart around the store.<br />
Listen... we had to divide and conquer when I went back to work and grocery shopping was on the top of my list to delegate... yeah, we'll call it delegating. I hate it and he doesn't mind it. Win-Win and a holla just for fun!!<br />
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Anywho, the Mr. is headed to Ohio this week with his family. Note... his entire family who helps me when he is not around. They will ALL be gone. Help<span style="font-size: x-small;">(aka Mr. grocery)</span> and backup plan<span style="font-size: x-small;">(aka, my "were in a jam can you help" help)</span>... GONE... ALL-OF-THEM.<br />
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THEN, as life does, the curve balls were thrown as soon as the purchase button was pushed on Southwest.com. I get an email about a mandatory training that I have to go into the office for. SHIZ! Justin has tutor that night... good thing I have a lead foot. BOTH of my kids have spring concerts... on separate nights. Leighanna has viola lessons etc etc etc... the list goes on really. I don't think I've had to get dressed this much since I started working at home last summer. Crap stix... I hope I have clothes that fit because it's getting a bit to hot to wear sweatpants outside. Then again... I might be lucky to brush my hair this next week so I may not give two shits about what I'm wearing anyways.<br />
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I know, I know... all the single mama's out there are going "stop complaining you witch; its only a week". Believe me, I know I shouldn't complain. And I'm not really complaining, per say, just a "I'm dreading this" vent to help clear my mind.<br />
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Now I can go start my "to do" lists. I wonder if I can con Anthony into going grocery shopping before he leaves???<br />
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Happy Saturday!<br />
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Lorahttp://www.blogger.com/profile/07192247387107228743noreply@blogger.com0tag:blogger.com,1999:blog-8569641350490898348.post-10952684760758593492013-05-08T08:00:00.000-04:002013-05-08T14:13:37.042-04:00More than D Mom...<div dir="ltr" style="text-align: left;" trbidi="on">
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most nights, I don't know, anymore...</div>
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~Some Nights by Fun</div>
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More than a DMom, AM I? Some days I don't know. Some days I feel like guilt and worry have taken over all of my being. They've consumed me. They have become my shadow.<br />
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After all, its not me that I will hurt if I screw this up. And even though I doubt he would ever place the blame on me, I would surly consume all of it.<br />
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I was 31 when Justin was dx'd. At the time I was the 1st VP(in charge of fundraising) for the PTA. I scrapbooked as a hobby and even made a little money doing it. I made all of my teachers gifts, I KNEW when teacher appreciation week was, I stayed on top of things(except maybe the laundry... I was never good at that), I had my shit together. I was lippy and spunky. I loved photography and always had my camera with me.<br />
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Today... I'm older than 31. I feel 41! I am still lippy, for sure, but I haven't touched a scrapbook in who knows how long. The only camera I carry is on my phone- in which I carry around by a death grip, ready to look up carb rates and communicate numbers. I have become really good at hiding emotions. I keep a straight face, even when my insides are screaming. I do this for Justin's sake. This burden is not for him to carry right now... he will have plenty of time for that later. I can see the toll this new life has taken on my face. I can see the worry in my eyes when I look in the mirror. I can assure you, as long as I live, that worry will be there whether I want it to be or not. <br />
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Sometimes, I don't think people consider all the extras that come along with diabetes. Dealing with schools, strains on marriages, other children and friendships. Very few of us can say we didn't loose a friend or two through all of this. I understand that friendships come and go naturally at times, but when you are hurting over something so significant, so life altering... the pierce of loosing a friend hurts a whole lot more. <br />
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Some say that you should just do what you have to and move on. They say that I need to put "me" first. If you have the ability to do that... great! I certainly commend you, but I don't think that's a one size fits all solution. Some of us, choose to dive in head first and submerse ourselves in knowledge. Some choose advocacy as a way to give back or even cope. Some of us feel that by taking the burden for as long as we can will somehow help our children not burn out. And some of us have children, so young, that we don't have much option but living our life around all that D demands. It sucks, at times, but we choose to be that involved. We do this because we think, hope or pray that it will make a difference for their future. I, for one, don't feel that there is anything wrong with that. <br />
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But back to the question... Am I? Am I more that what I have become since D came into our lives 4 1/2 years ago? There was a time when my answer would have been no. There was a time when I was all alone. Lost. Swimming in numbers and medical supplies. However, time and new friendships have healed the open wounds. They are now scars; and though they may still be visible and sore... They are healing.<br />
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For me, going back to work has been both a blessing and a curse. On one hand it is my escape from the 24-7 that diabetes requires. I was forced to hand over some of the work load, which gives me a break, however, along with with handing it over, comes more guilt and more worry. Because I am not there. <br />
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Working also hinders being able to advocate for Justin's needs at school. More guilt. This has proven to be my most difficult challenge. The school, UGH! That is all I will say about that.<br />
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For me, working is a necessary inconvenience. Though I am grateful for my job, and I even like it, I didn't choose to go back to work. I wish I could have prolonged the inevitable a while longer, but D, that rotten, stinkin, no good, D... choose my fate for me. D is not cheep. Just another "extra" that comes along with diabetes. <br />
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Still the question remains... Am I more than DMom? Sure! I am Justin's mom and Leighanna's mom. I am a work at home mom too. So I guess there is more mom to me than just D. It just seems that D is my most unruly of the bunch! <br />
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**This post is the brainchild of the uber awesome <a href="http://www.theprincessandthepump.com/2013/05/more-than-d-mom.html" target="_blank"><span style="color: #666666;">Hallie Addington, the “More than a D Mom” series</span></a>. Posts will continue throughout this week and maybe even next week.<br />
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You can see Hallie's post from day one <a href="http://www.theprincessandthepump.com/2013/05/more-than-d-mom.html" target="_blank">here</a>. <br />
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And then be sure to check out the dangerously fabulous, Meri's post from day two <a href="http://www.ourdiabeticlife.com/2013/05/more-than-d-mom.html" target="_blank">here</a>. <br />
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Up next, a DMom full of <a href="http://www.candyheartsblog.com/" target="_blank">Candy Hearts</a>, Wendy, will hosting the "More than A DMom" series. Be sure to pop on over tomorrow to read Wendy's take on things.<br />
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Lorahttp://www.blogger.com/profile/07192247387107228743noreply@blogger.com7tag:blogger.com,1999:blog-8569641350490898348.post-3139369635711974672013-04-28T23:58:00.003-04:002013-04-29T00:01:16.133-04:00Finding time...<div dir="ltr" style="text-align: left;" trbidi="on">
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<em style="font-family: verdana, Arial, Tahoma, 'Century gothic', sans-serif; font-size: 12px; line-height: 24px; margin: 0px; padding: 0px;"><span style="background-color: black; color: magenta;">You’re writing the story of your life one moment at a time.</span></em></div>
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<span style="font-family: verdana, Arial, Tahoma, 'Century gothic', sans-serif; font-size: 12px; line-height: 24px;"><span style="background-color: black; color: magenta;">~Doc Childre and Howard Martin</span></span></div>
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I was chatting with a friend tonight about all the different opportunities there are to get involved in the DOC. There are like 1 million Facebook groups(literally), twitter(which I suck at), chats, conferences, DSMA, JDRF etc... <br />
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Then I made a comment... "I NEED to get back into blogging; I can feel myself sinking". <br />
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For some time I have been saying "I need to start blogging again, but I just don't have time". Life as a working mom doesn't leave a whole lot of time for blogging. But ya know, this was my diary. Granted, there's no key to lock it up before I hide it under my bed; anyone can read it, but it is where I wrote about my fears and my victories. It's where I found help and friendship through a dark time. It's where I could be silly and be me.<br />
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I miss having that outlet and I can feel the weight pushing down on me with out it. That kind of scares the crap out of me - I never liked that dark place.<br />
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Lorahttp://www.blogger.com/profile/07192247387107228743noreply@blogger.com3tag:blogger.com,1999:blog-8569641350490898348.post-83958531161617715962013-02-22T01:40:00.000-05:002013-02-22T01:40:10.328-05:00The DOC Rocks - The School... not-so-much<div dir="ltr" style="text-align: left;" trbidi="on">
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<span style="background-color: black; color: magenta; font-size: large;"><span style="font-family: georgia, serif; line-height: 18px; text-align: left;">“There is no exercise better for the heart than reaching down and lifting people up.” </span><br style="font-family: georgia, serif; line-height: 18px; text-align: left;" /><span style="font-family: georgia, serif; line-height: 18px; text-align: left;">― </span><span style="font-family: georgia, serif;"><span style="line-height: 18px; text-align: left;">John Holmes</span></span></span></div>
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This really is a great community. Anything from medical supplies to information... it's yours when you need it. I asked one person for a help; and not only did he help me... he recruited others to help me too. Thank you, <a href="http://scottsdiabetes.com/" target="_blank">Scott</a>, for not only getting me the information I needed, but also giving the strength to pick myself back up and go another round.<br />
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I haven't been able to sleep much.The upcoming meeting at Justin's school had my mind in constant motion. Oh, did I mention that? Yeah, we had a meeting a few weeks ago. I've been through these meetings before, but this is a new school for Justin. We are no longer in the comfort of an elementary school. I've never volunteered here. I didn't spend years on the board. I have never built a relationship with anyone. I couldn't... I had to go back to work instead.<br />
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So this meeting(the one a few weeks ago)- it went "okay". I asked for an additional accommodation because Justin seems to be "missing" stuff. He has a shit load of stuff going on... on top of D, Justin was dx'd with absent seizures, meaning he "looses time". Granted there's medication for this, but let me tell you... I'm not sure which is worse, the medication or the seizures themselves. That's a couple of the challenges Justin faces... he has other medical dx's as well, all of which mess with the mind and impairs brain function. One alone may or may not be easily overcome, but all together... he needs a little help. Simple.as.that! I think we do pretty damn well considering.<br />
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But I digress...<br />
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Due to seizures, side effects of medication(ie: memory loss, inability to focus, loss of time etc...) I asked for communication, however the teacher wanted to go about it, of all assignments that needed to be completed at home- in order to ensure they are completed and turned in on time. This is an issue... he missing instructions.<br />
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I was there well over two hours... the teachers had to leave long before I did(apparently they have classes to teach?? I dunno!) so the excuse that day was that the teachers weren't there to "agree". I thought we were all on the same page before they left, but okay.<br />
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So I hear nothing... I give it a week and reach out the guidance counselor. I get a call back and argue my point, once again, before she reluctantly agrees. I was told I would have the updated 504 to look at by the end of that week.<br />
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Instead, I get an email with an apology. Another entire week goes by - so that following Monday I call. You see, we were suppose to have the 504 in place before conference night(which was tonight); when I called... conference night was only 3 days away.<br />
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Finally, Tuesday afternoon, Justin brings home the new plan. It reads "Justin will write the assignments in his agenda. At the end of class he will give it to the teacher to initial and if the assignments are not there... the teacher will communicate with parent". Great! Give Justin an opportunity and add in a back up plan, right?<br />
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I was okay with this and signed the new plan thinking everything was set. Only, it wasn't. Apparently, "some" of the teachers did not agree. "They don't feel it is their responsibility to communicate his assignments with me". WHY DIDN'T WE CONSULT THEM AT SOME POINT IN THE LAST THREE WEEKS??????????? Wasn't that the point of not doing it that day??? Mind you... I didn't get a call about that. I found out at the conference; the conference where we were going to "go over the new plan with the teacher". UN FUCKING BELIEVABLE!!! So essentially, that conference was a waist of my time because I now have to go to ANOTHER meeting, where the district ESE supervisor will be called in to "hash it out".<br />
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Believe me, I am not asking for a free ride here, I am not ignorant to the fact that things will get more challenging as Justin gets older. I worry every single day about my choices, but the alternative is to do nothing and let him fail, when he did not choose to have these disabilities. He did not choose to take this medication... I am the one who hands it to him every single day.<br />
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HE had no say in the matter.<br />
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I have no choice but to help him... it is my job. I will just have faith that it will all work out in the end and I will have to face the future... well, in the future.<br />
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Lorahttp://www.blogger.com/profile/07192247387107228743noreply@blogger.com3tag:blogger.com,1999:blog-8569641350490898348.post-887297779922573792013-01-20T12:40:00.000-05:002013-01-21T10:57:12.734-05:00My 48<div dir="ltr" style="text-align: left;" trbidi="on">
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48 Questions: A little more of Lora</span></span></h3>
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<span style="background-color: black;"><span style="color: white;"> <i>DSMA suggested the DOC get to know each other better by answering these 48 questions. DSMA might want to be careful what they wish for...</i></span></span></div>
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<span style="background-color: black;"><span style="color: white;">1. WERE YOU NAMED AFTER ANYONE?</span></span></div>
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<span style="background-color: black;"><span style="color: white;">Sort of... my great grandmothers name was Dora undisclosed middle name, but my mom didn't want to name me "Dora middle name", so she named me Lora middle name (enter the strange spelling of Lora(instead of Laura and not to be confused with Lori) that can never be found on a cute coffee mug or key chain). </span></span></div>
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<span style="background-color: black;"><span style="color: white;">2. WHEN WAS THE LAST TIME YOU CRIED?</span></span></div>
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<span style="background-color: black;"><span style="color: white;">Its actually been a couple weeks, I think. But I have a meeting at Justin's school in a week, so... it's coming.</span></span></div>
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<span style="background-color: black;"><span style="color: white;">3. DO YOU LIKE YOUR HANDWRITING?</span></span></div>
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<span style="background-color: black;"><span style="color: white;">Not.so.much!! Not so good when you're a bit OCD. I write the same note over and over until I am happy with the way it "looks".</span></span></div>
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<span style="background-color: black;"><span style="color: white;">4. WHAT IS YOUR FAVORITE LUNCH MEAT?</span></span></div>
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<span style="background-color: black;"><span style="color: white;">Honey Ham</span></span></div>
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<span style="background-color: black;"><span style="color: white;">5. DO YOU HAVE KIDS?</span></span></div>
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<span style="background-color: black;"><span style="color: white;">Um, yes! Their the little people in the blog header.</span></span></div>
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<span style="background-color: black;"><span style="color: white;">6. IF YOU WERE ANOTHER PERSON, WOULD YOU BE FRIENDS WITH YOU?</span></span></div>
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<span style="background-color: black;"><span style="color: white;">Damn skippy! I'm a good friend. Just look up my name in the <a href="http://www.urbandictionary.com/" target="_blank">Urban Dictionary</a>, it will tell you.</span></span></div>
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<span style="background-color: black;"><span style="color: white;">7. DO YOU USE SARCASM A LOT?</span></span></div>
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<span style="background-color: black;"><span style="color: white;">What do you think my "undisclosed" middle name is? </span></span></div>
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<span style="background-color: black;"><span style="color: white;">8. DO YOU STILL HAVE YOUR TONSILS?</span></span></div>
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<span style="background-color: black;"><span style="color: white;">Yes, yes I do.</span></span></div>
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<span style="background-color: black;"><span style="color: white;">9. WOULD YOU BUNGEE JUMP?</span></span></div>
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<span style="background-color: black;"><span style="color: white;">Okay, so here's the plan... I am going to push <a href="http://wecaralot.blogspot.ca/2013/01/the-next-48.html" target="_blank">Nic</a> off the ledge and then Jump.</span></span></div>
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<span style="background-color: black;"><span style="color: white;">SOOO, I guess that means I would. </span></span></div>
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<span style="background-color: black;"><span style="color: white;"><span style="font-size: 18px; line-height: 24px;"> </span><span style="font-size: 18px; line-height: 24px;"> </span></span></span></div>
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<span style="background-color: black;"><span style="color: white;">10. WHAT IS YOUR FAVORITE CEREAL?</span></span></div>
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<span style="background-color: black;"><span style="color: white;">Captain Crunch WITH Crunch Berries</span></span></div>
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<span style="background-color: black;"><span style="color: white;">11. DO YOU UNTIE YOUR SHOES WHEN YOU TAKE THEM OFF?</span></span></div>
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<span style="background-color: black;"><span style="color: white;">Na! That would require me to bend over...<span style="font-size: 18px; line-height: 24px;"> too much like work. </span></span></span></div>
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<span style="background-color: black;"><span style="color: white;">12. DO YOU THINK YOU ARE STRONG?</span></span></div>
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<span style="background-color: black;"><span style="color: white;">I think the past 4 1/2 years has proven how strong I am.</span></span></div>
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<span style="background-color: black;"><span style="color: white;">13. WHAT IS YOUR FAVORITE ICE CREAM?</span></span></div>
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<span style="background-color: black;"><span style="color: white;">Heavenly Hash, but you can't find it any more.</span></span></div>
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<span style="background-color: black;"><span style="color: white;">14. WHAT IS THE FIRST THING YOU NOTICE ABOUT PEOPLE?</span></span></div>
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<span style="background-color: black;"><span style="color: white;">Their shoes.</span></span></div>
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<span style="background-color: black;"><span style="color: white;">15. RED OR PINK?</span></span></div>
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<span style="background-color: black; color: white;">Pink</span></div>
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<span style="background-color: black;"><span style="color: white;">16. WHAT IS THE LEAST FAVORITE THING ABOUT YOURSELF?</span></span></div>
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<span style="background-color: black;"><span style="color: white;">My legs. HATE THEM!!</span></span></div>
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<span style="background-color: black;"><span style="color: white;">17. WHO DO YOU MISS THE MOST?</span></span></div>
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<span style="background-color: black;"><span style="color: white;">My grandma. She passed away last April.</span></span></div>
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<span style="background-color: black;"><span style="color: white;">Lets move along before I have to re-visit #2</span></span></div>
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<span style="background-color: black;"><span style="color: white;">18. WHAT IS THE TECHNIQUE THAT YOU NEED TO WORK ON THE MOST?</span></span></div>
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<span style="background-color: black;"><span style="color: white;">Punctuation!;...:-? </span></span></div>
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<span style="background-color: black;"><span style="color: white;">19. WHAT COLOR SHOES ARE YOU WEARING?</span></span></div>
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<span style="background-color: black;"><span style="color: white;">None... its like 5 am.</span></span></div>
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<span style="background-color: black;"><span style="color: white;">20. WHAT WAS THE LAST THING YOU ATE?</span></span></div>
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<span style="background-color: black;"><span style="color: white;">Margarita pizza and spinach dip</span></span></div>
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<span style="background-color: black;"><span style="color: white;">21. WHAT ARE YOU LISTENING TO RIGHT NOW?</span></span></div>
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<span style="background-color: black;"><span style="color: white;">Dead silence. Everyone is asleep. It's kinda nice.</span></span></div>
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<span style="background-color: black;"><span style="color: white;">22. IF YOU WERE A CRAYON, WHAT COLOR WOULD YOU BE?</span></span></div>
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<span style="background-color: black;"><span style="color: white;">You know when you were little(or last week) when you take a handful of crayons and line them all up to color one big colorful mess. That's me. We can call it "all kinds of tie-dye.</span></span></div>
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<span style="background-color: black;"><span style="color: white;">23. FAVORITE SMELLS?</span></span></div>
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<span style="background-color: black;"><span style="color: white;">Gardenias.</span></span></div>
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<span style="background-color: black;"><span style="color: white;">24. HOW IMPORTANT ARE YOUR POLITICAL VIEWS TO YOU?</span></span></div>
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<span style="background-color: black;"><span style="color: white;">I have views, but I don't preach them and I sure as hell don't get into conversations about them.</span></span></div>
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<span style="background-color: black;"><span style="color: white;">25. MOUNTAIN HIDEAWAY OR BEACH HOUSE?</span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;">If the beach house is quiet... we'll go there. </span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
</div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;"><br /></span></span>
<span style="background-color: black;"><span style="color: white;"><br /></span></span>
<span style="background-color: black;"><span style="color: white;">26. FAVORITE SPORTS TO WATCH?</span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;">Favorite what?</span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
</div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;"><br /></span></span>
<span style="background-color: black;"><span style="color: white;"><br /></span></span>
<span style="background-color: black;"><span style="color: white;">27. HAIR COLOR?</span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;">Black and Blond</span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;"><br /></span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;"><br /></span></span>
<span style="background-color: black;"><span style="color: white;">28. EYE COLOR?</span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;">Blue</span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
</div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;"><br /></span></span>
<span style="background-color: black;"><span style="color: white;"><br /></span></span>
<span style="background-color: black;"><span style="color: white;">29. DO YOU WEAR CONTACTS?</span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;">I have them, but I tend to wear my glasses more.</span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
</div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;"><br /></span></span>
<span style="background-color: black;"><span style="color: white;"><br /></span></span>
<span style="background-color: black;"><span style="color: white;">30. FAVORITE FOOD?</span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;">Pasta</span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
</div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;"><br /></span></span>
<span style="background-color: black;"><span style="color: white;">31. SCARY MOVIES OR HAPPY ENDINGS?</span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;">I prefer a good love story with a happy ending, I am sappy like that, but I will turn the lights out and watch a scary movie too.</span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;"> </span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;"><br /></span></span>
<span style="background-color: black;"><span style="color: white;">32. LAST MOVIE YOU WATCHED?</span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;">Purple Rain... I totally sang.</span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
</div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
</div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;"><br /></span></span>
<span style="background-color: black;"><span style="color: white;"><br /></span></span>
<span style="background-color: black;"><span style="color: white;">33. WHAT COLOR SHIRT ARE YOU WEARING?</span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;">Pink</span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
</div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;"><br /></span></span>
<span style="background-color: black;"><span style="color: white;"><br /></span></span>
<span style="background-color: black;"><span style="color: white;">34. SUMMER OR WINTER?</span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;">Winter! I love fall/winter clothes. I do live in FL though... winter for me is like 60 degrees.</span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
</div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;"><br /></span></span>
<span style="background-color: black;"><span style="color: white;"><br /></span></span>
<span style="background-color: black;"><span style="color: white;">35. FAVORITE DESSERT?</span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
</div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;">Hot Apple Crisp</span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
</div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;"><br /></span></span>
<span style="background-color: black;"><span style="color: white;"><br /></span></span>
<span style="background-color: black;"><span style="color: white;">36. STRENGTH TRAINING OR CARDIO?</span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;">Cardio! If I do too much "strength training", I would look like a man.</span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;"><br /></span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;"><br /></span></span>
<span style="background-color: black;"><span style="color: white;">37. COMPUTER OR TELEVISION?</span></span></div>
<div style="text-align: center;">
<span style="background-color: black; color: white; font-family: Cantarell; font-size: medium;"><span style="line-height: 24px;">Tough one!!! I am usually doing both </span><span style="line-height: 23.99147605895996px;">simultaneously</span><span style="line-height: 24px;">.</span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;"><br /></span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;"><br /></span></span>
<span style="background-color: black;"><span style="color: white;">38. WHAT BOOK ARE YOU READING NOW?</span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;">Right now... nothing. I need to try and catch up on blogs.</span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
</div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
</div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;"><br /></span></span>
<span style="background-color: black;"><span style="color: white;"><br /></span></span>
<span style="background-color: black;"><span style="color: white;">39. WHAT IS ON YOUR MOUSE PAD?</span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;">Red leather.</span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
</div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;"><br /></span></span>
<span style="background-color: black;"><span style="color: white;"><br /></span></span>
<span style="background-color: black;"><span style="color: white;">40. FAVORITE SOUND?</span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;">I don't think I have one of those... SHIT!!! I need to get a sound.</span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
</div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
</div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;"><br /></span></span>
<span style="background-color: black;"><span style="color: white;"><br /></span></span>
<span style="background-color: black;"><span style="color: white;">41. FAVORITE GENRE OF MUSIC?</span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;">This changes with my mood. Right now, I have the Flo Rida Radio kickin on the Pandora, but next week, who knows, we might be back to One Republic or Garth Brooks.</span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;"><br /></span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;"><br /></span></span>
<span style="background-color: black;"><span style="color: white;">42. WHAT IS THE FARTHEST YOU HAVE BEEN FROM HOME?</span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
</div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;"> Mexico </span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;"><br /></span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;"><br /></span></span>
<span style="background-color: black;"><span style="color: white;">43. DO YOU HAVE A SPECIAL TALENT?</span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;">I have a lot of "special" hidden talents</span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
</div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;"><br /></span></span>
<span style="background-color: black;"><span style="color: white;"><br /></span></span>
<span style="background-color: black;"><span style="color: white;">44. WHERE WERE YOU BORN?</span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;">At a hospital </span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;"><br /></span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
</div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;"><br /></span></span>
<span style="background-color: black;"><span style="color: white;">45. WHERE ARE YOU LIVING NOW?</span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;">In my house</span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
</div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;"><br /></span></span>
<span style="background-color: black;"><span style="color: white;"><br /></span></span>
<span style="background-color: black;"><span style="color: white;">46. WHAT COLOR IS YOUR HOUSE?</span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;"> Outside is brown</span></span><br />
<span style="background-color: black;"><span style="color: white;">Inside is green, red, tan, blue(2 shades) or Orange depending on what room you're in. </span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;"><br /></span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;"><br /></span></span>
<span style="background-color: black;"><span style="color: white;">47. WHAT COLOR IS YOUR CAR?</span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;">White... I hate white cars.</span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
</div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
</div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;"><br /></span></span>
<span style="background-color: black;"><span style="color: white;"><br /></span></span>
<span style="background-color: black;"><span style="color: white;">48. DO YOU LIKE ANSWERING 48 QUESTIONS?</span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;">That was it??? Is there another 48???</span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;"><br /></span></span></div>
<div style="font-family: Cantarell; font-size: 18px; line-height: 24px; text-align: center;">
<span style="background-color: black;"><span style="color: white;">And now it's your turn, get your 48 questions on.</span></span><br />
<span style="background-color: black;"><span style="color: white;"><br /></span></span>
<span style="background-color: black;"><span style="color: white;"><br /></span></span>
<div class="separator" style="clear: both; text-align: center;">
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Lorahttp://www.blogger.com/profile/07192247387107228743noreply@blogger.com4tag:blogger.com,1999:blog-8569641350490898348.post-77903045626165889052013-01-19T04:32:00.000-05:002013-01-19T04:34:33.478-05:00THE 3 AM POST...I can't sleep. I have been up since the 2:30 alarm screamed at me to test Justin. My brain refuses to turn off long enough for me to fall back into my previous drool-ish slumber. Had I known what was in store, I would have skipped giving him the Juicy Juice and thrown in a little night time basal testing... I'm over due anyways.<br />
<br />
Alright, back to "my brain" - its spinning! I received a call from the guidance counselor today about a "team meeting". She mentioned some emails and said we all needed to get some clarification. The ONLY emails that have been sent were about an assignment Justin was penalized for turning in late after a low blood sugar<a href="http://www.mydiabetic-child.com/2012/11/this-one-hurt-my-heart.html" target="_blank"> (you can read about it here)</a>.<br />
<br />
It was over a month of emails trying to get that rectified. Unacceptable, I think. In the end she did give him full credit on the assignment, but not before searching... literally searching, for a loop hole that would allow her to mark him off for turning in an assignment one flippin ass day late. He was 48, DAMN IT!!!!<br />
<br />
I don't get it. Why is it so hard to make people understand. Why does there ALWAYS have to be one person giving our kids a hard time. I'm not asking for the world and it surly doesn't take a rocket scientist to read a 504 and say to themselves... "self - this kid has accommodations for a reason" and they could also throw in a little "they have enough to deal with; without me being a pain and giving them a hard time". <br />
<br />
That's wishing for a fairy-tail, right?<br />
<br />
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<br />Lorahttp://www.blogger.com/profile/07192247387107228743noreply@blogger.com4